Eden's Entourage

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Eden is a 6th Grader at Diller-Odell Elementary.  Eden has been diagnosed with Rett Syndrome.  Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls and affects their ability to speak, walk, eat, and even breathe easily. Rett syndrome is caused by mutations on the X chromosome on a gene called MECP2.  Despite their motor control issues, individuals with Rett Syndrome can read, write, and communicate with proper technology support.  They are courageous, intelligent, and very capable people.

Eden’s Entourage is a group that was created in support of Eden.  Eden’s mother first started the group, and since then we have started incorporating it into the school environment.  At school, we have chosen to use the concept of Eden’s Entourage as a way to include Eden’s classmates in experiences that we want to provide to Eden.  However, ALL Diller-Odell students are very supportive of Eden and enjoy having her as a part of our school. 

With support from fundraising, we will have the opportunity to take Eden’s Entourage on field trips to the movies, restaurants, and other local community events.  Please watch for upcoming fundraising events that will help support this amazing cause!